11. Self-Advocacy and Resources
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Rheumatic Resilience Series

This 11-part virtual video series was created by a Misericordia University occupational therapy doctoral student to provide adults with rheumatic conditions practical strategies to improve quality of life and build long-term self-management.
  • 11. Self-Advocacy and Resources

    08:19

    This video introduces the concept of self advocacy and provides practical tips for advocating for yourself in the healthcare system. It also reviews various resources that can provide support and information for managing chronic conditions.

    11. Self-Advocacy and Resources

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  • 10. Mental Health

    10:54

    The video discusses the impact of rheumatic conditions on mental health, the importance of managing stress and emotions, and tips for self-care and advocacy.

    10. Mental Health

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  • 9. Social Participation

    13:11

    This video discusses the importance of social participation and community engagement for individuals living with chronic conditions. It covers the impact of social support on well-being, strategies for cognitive reframing, identifying barriers and supports, and practicing self-compassion. The video also provides a variety of ideas for staying involved in the community, such as volunteering, joining support groups, engaging in advocacy, and participating in social activities.

    9. Social Participation

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  • 8. Sleep and Restorative Routines

    09:56

    This video discusses the importance of sleep hygiene in managing rheumatic conditions, including the impact of poor sleep on pain, inflammation, and daily activities. It also provides tips and strategies for improving sleep quality and developing restorative routines.

    8. Sleep and Restorative Routines

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  • 7. Mindfulness

    22:27

    This video explores the impact of stress on the mind and body, particularly for individuals living with rheumatic conditions. It covers different types of stress, the connection between stress and disease activity, and the role of mindfulness practices in managing stress and symptoms.

    7. Mindfulness

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  • 6. Anti-Inflammatory Foods

    12:27

    This video reviews the difference between acute and chronic inflammation, the impact of diet on inflammation, and provides practical strategies for incorporating anti inflammatory foods into your diet.

    6. Anti-Inflammatory Foods

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  • 5. Joint Safe Exercise and Stretching

    14:20

    The video discusses the importance of staying active and engaging in safe movement and exercise for individuals with rheumatic conditions. It provides guidelines and options for low-impact, gentle movement, consistency, and pain-free range of motion. It also covers the benefits of stretching, strengthening, yoga, and other supportive practices for joint health and overall well-being.

    5. Joint Safe Exercise and Stretching

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  • 4. Energy Conservation

    14:07

    This video provides strategies for managing limited energy in daily life for individuals with rheumatic conditions. The presenter discusses the impact of fatigue, provides analogies for understanding energy levels, identifies factors contributing to fatigue, and offers tools for conserving and managing energy effectively.

    4. Energy Conservation

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  • 3. Joint Protection and Adaptive Equipment

    20:58

    This video discusses strategies for protecting joints and introduces different types of adaptive equipment to make daily activities easier. It covers joint protection techniques, principles to consider, as well as do-it-yourself alternatives for adaptive equipment. The video also provides tips for using adaptive equipment and references for further information.

    3. Joint Protection and Adaptive Equipment

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  • 2. Pain Management

    29:27

    This video provides an in-depth exploration of pain, its origins, and strategies for managing it daily. It covers chronic inflammation, neuronal mechanisms, and how factors like emotion, physical activity, and nutrition impact pain perception. Practical advice includes the use of heat and cold therapies, the benefits of physical activity, stress management through mindfulness, and maintaining a pain diary to identify triggers and patterns.

    2. Pain Management

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  • 1. Life Balance and Goal Setting

    11:45

    This video is the first module of an 11-part series focused on strategies to improve quality of life and build confidence in managing rheumatic conditions long term. In this module, the focus is on life balance and goal setting, with an emphasis on identifying burnout, prioritizing tasks, and setting boundaries to achieve a more balanced routine.

    1. Life Balance and Goal Setting

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  • 11. Self-Advocacy and Resources
  • 10. Mental Health
  • 9. Social Participation
  • 8. Sleep and Restorative Routines
  • 7. Mindfulness
  • 6. Anti-Inflammatory Foods
  • 5. Joint Safe Exercise and Stretching
  • 4. Energy Conservation
  • 3. Joint Protection and Adaptive Equipment
  • 2. Pain Management
  • 1. Life Balance and Goal Setting